Everyone dies, but what is the best practice in dying

Bison code: L.28116 (for GT: L.28117)

In order to be able to offer good palliative care that fits with the wishes, needs and values of the patient, network palliative care Twente has developed a tool. The tool is called “Wish Book” (In Dutch: Wensenboekje). It is a booklet with the most important goals for life and care around death. It helps patients to talk about the most important issues regarding palliative care with their loved ones and the healthcare professionals. The first goal is to give patients the opportunity to die in the place they prefer. Because people don’t really think about it, the booklet helps the patient with topics that he can determine the way to his end of life. The second goal is fewer hospitalizations in the last period of his life. If the patient and the healthcare professionals are aware of the needs, values and wishes of the patient, appropriate, person-cantered care is provided that hopefully leads to fewer hospitalizations. This helps the patient to die at the place of preference, not start unnecessary treatments and reduce costs by eliminating very expensive treatments. The third goal is for the tool to help the professionals start the conversation about the end of life earlier. When the healthcare professionals start this conversation proactively, the better the care meets the wishes and needs of the patient.

The developed tool ‘the Wish Book’ helps patients formulate their values, needs and wishes. In the Twente region, almost 5000 of these Wish Books are given to patients. Because of the popularity other regions have adopted the use of the “Wish Book”, such as Groningen and Friesland.

The goal that’s central to this first SSS assignment is to evaluate the use of the Wish Books. How is the Wish Book experienced by the patient and his loved ones. What are the experiences of healthcare professionals? Which parts are specifically interesting? How is the wish book highlighted? (through which healthcare professionals)? What is missing in these books?

Next, the request is to digitalise this book into a web-based application. What audiences would use this app? What does it take to host this app, which contains patient data that needs to be protected and must be accessible for years to come.

Cluster: Live Together, Mourn Together