To sign up for this cluster, use Bison code L.27370.
Important note: students G&T (Health and Applied Technology) use L.27371.
This cluster consists of the following projects:

How to promote digital legacy

Statement 1: Social media is just as common as having lunch or going out. Statement 2: There is one certainty in life, and that’s the fact that you’re going to die. In this project, we will combine those two statements. What will happen with ‘the digital you’, after your death? Do you have a digital legacy? And – most importantly – how can young people (16-40 yrs) be motivated to arrange their digital legacy? Do they need a certain aid (app, digital document, et cetera)? With a (written) document about digital legacy, their relatives will know what they should do with the social media accounts, digital data, digital possessions (bitcoins for example) of the deceased person.They will also have (limited?) access to (parts of) the information (stored in the Cloud) of the deceased person.

Telehealth in end of life care

End of life care encompasses an intensive period of palliative care in the terminal phase of someone’s life. It is important that healthcare professionals and informal caregivers have close contact with each other in coordinating the most adequate care in cooperation with the patient and his/her family members. However, it is not always possible to have all caregivers together at the right time at the right place. Care technology like telehealth could be a solution to overcome such problems. ‘Telehealth involves the use of telecommunications and virtual technology to deliver health care outside of traditional health-care facilities.’ The use of telehealth is increasing, the Corona-crisis has had a forcing impact on the use of telehealth. General practitioners in the eastern part of the Netherlands have begun to use FaceTalk (QConferencing), and more healthcare professionals have begun to use the Siilo app for ‘apping’ a collegue. The Corona-crisis has enforced the use of telehealth, but the question rises what telehealth is useful for when it comes to healthcare professionals and informal caregivers engaged in providing end of life care. What can we learn from the Corona-crisis up til now (September 2020)? In this assignment we would like to see: Research to current use of telehealth, Prioritizing what telehealth the best fit for collaboration between caregivers (homecare nurse, general practitioner, caregivers at an hospice, etc.) from different institutes, making an instruction video showing how to use one or more telehealth applications. We are looking for creative students interested in care for vulnerable people, with a background in creative business, in creative media or ICT and in nursing or health and technology. We offer guidance from two collaborating research groups, Nursing and Technology Health & Care, with close contacts with palliative care networks in de the eastern part of the Netherlands. This enables participation of the target group of professionals of palliative care in the project team.

PRALEiN, talking about the end of life

This project is named PRALEiN, which derives from “talking about the end of life” (in Dutch) with elderly care recipients with a severe multiple (intellectual) disability. Healthcare professionals experience barriers, mainly due communication problems, in identifying the need for Care Planning for severe multiple-disabled recipients in the palliative phase. Recently, the Proactive Care Planning Discussion Guide has been developed, which is applied to care recipients with dementia and forgetfulness. Proactive Care Planning focuses on early mapping of life goals and choices for now and in the future. It promotes the person’s own life choices and the quality of life. This project focusses on testing and finishing of a concept Discussion Guide tailor made to elderly care recipients with a severe multiple (intellectual) disability. An other SSS group has developed an advisory report, a prototype (concept) and a manual in the last semesters. The concept guide is aimed to help healthcare professionals discuss different themes related to end of life   with care recipients with a severe multiple (intellectual) disability. The next step is to test the prototype and to develop a definitive product. So, if you are interested in improving communication about the end of life for people with a severe multiple (intellectual) disability, please sign up for this project!

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Questions about this cluster?

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